Legal & Ethical - Revision history

Mmcgale at 23:54, 3 December 2025

2025-12-03T23:54:00Z

← Older revision		Revision as of 23:54, 3 December 2025
Line 1:		Line 1:
	=Legal ~~& Ethical=~~		= Legal Standards =

	~~== LEGAL STANDARDS =~~=

	The relevant legal standard in Australia for the creation, curation, preservation, and access of data is The Privacy Act 1988 [63], the principle Australian Government legislation protecting the handling and disclosure of individuals’ personal information.		The relevant legal standard in Australia for the creation, curation, preservation, and access of data is The Privacy Act 1988 [63], the principle Australian Government legislation protecting the handling and disclosure of individuals’ personal information.


	=~~= MANAGEMENT OF DISCLOSURE RISK =~~=		= Management of Disclosure Risk =

	All data are evaluated by an ADA archivist to determine disclosure risks and appropriate actions that should be taken to mitigate that risk. To comply with the Privacy Act, archivists first ensure that no directly identifying information (such as participant names and contact details) are included in the data and will remove any such information from all copies of the data files held and disseminated by the ADA. The archivists will also examine the data for indirect identifying information and evaluate risks of disclosure that might arise from combining that information and/or linking that data with other sensitive information in data or other sources.		All data are evaluated by an ADA archivist to determine disclosure risks and appropriate actions that should be taken to mitigate that risk. To comply with the Privacy Act, archivists first ensure that no directly identifying information (such as participant names and contact details) are included in the data and will remove any such information from all copies of the data files held and disseminated by the ADA. The archivists will also examine the data for indirect identifying information and evaluate risks of disclosure that might arise from combining that information and/or linking that data with other sensitive information in data or other sources.
Line 17:		Line 15:


	=~~= ETHICAL STANDARDS =~~=		= Ethical Standards =

	The depositor is responsible for ensuring that data provided to the ADA has been collected from research participants subject to approved research ethics requirements. The ADA does not explicitly request or require evidence of ethical approval or review prior to deposit and the depositor must determine if their ethical obligations permit sharing of data.		The depositor is responsible for ensuring that data provided to the ADA has been collected from research participants subject to approved research ethics requirements. The ADA does not explicitly request or require evidence of ethical approval or review prior to deposit and the depositor must determine if their ethical obligations permit sharing of data.
Line 33:		Line 31:
	The ADA also complies with ethical norms for data sharing as described in the Five Safes Framework [96]. As described above, procedures for identifying and mitigating disclosure risk are in place to ensure data is sufficiently safe for secondary use. The ADA also evaluates requests for data access against the four remaining risk aspects of the framework to ensure that the people making the request, their projects, settings, and outputs are also sufficiently safe.		The ADA also complies with ethical norms for data sharing as described in the Five Safes Framework [96]. As described above, procedures for identifying and mitigating disclosure risk are in place to ensure data is sufficiently safe for secondary use. The ADA also evaluates requests for data access against the four remaining risk aspects of the framework to ensure that the people making the request, their projects, settings, and outputs are also sufficiently safe.

	==References==		=References=

	[33] Quality Assurance – (https://docs.ada.edu.au/index.php/Quality_Assurance)		[33] Quality Assurance – (https://docs.ada.edu.au/index.php/Quality_Assurance)

Mmcgale at 07:12, 3 December 2025

2025-12-03T07:12:56Z

← Older revision		Revision as of 07:12, 3 December 2025
Line 1:		Line 1:
	=Legal & Ethical=		=Legal & Ethical=

	==~~Legal standards~~ ==		== LEGAL STANDARDS ==

	The relevant legal standard in Australia for the creation, curation, preservation, and access of data is The Privacy Act 1988 [63], the principle Australian Government legislation protecting the handling and ~~disclose~~ of individuals’ personal information.		The relevant legal standard in Australia for the creation, curation, preservation, and access of data is The Privacy Act 1988 [63], the principle Australian Government legislation protecting the handling and disclosure of individuals’ personal information.

	~~==Management of Disclosure Risk ==~~

	All data are evaluated by an ADA archivist to determine disclosure risks and appropriate actions that should be taken to mitigate that risk. To comply with the Privacy Act, archivists first ensure that no directly identifying information (such as participant names and contact details) are included in the data and will remove any such information from all copies of the data files held and disseminated by the ADA. The archivists will also examine the data for indirect identifying information and evaluate risks of disclosure that might arise from combining that information and/or linking that data with other sensitive information in data or other sources.		== MANAGEMENT OF DISCLOSURE RISK ==

	~~There~~ are ~~a range of mitigation~~ actions that archivists ~~can recommend to depositors~~ as ~~detailed~~ in ~~section R08~~. The ~~ADA~~ will ~~typically make these changes to~~ the data ~~on behalf~~ of ~~the depositor~~.		All data are evaluated by an ADA archivist to determine disclosure risks and appropriate actions that should be taken to mitigate that risk. To comply with the Privacy Act, archivists first ensure that no directly identifying information (such as participant names and contact details) are included in the data and will remove any such information from all copies of the data files held and disseminated by the ADA. The archivists will also examine the data for indirect identifying information and evaluate risks of disclosure that might arise from combining that information and/or linking that data with other sensitive information in data or other sources.

	~~Risk assessment tools~~ are ~~currently~~ in ~~use and in development at~~ the ~~ADA. See sections R10 [33]~~ and ~~R11~~ [34] ~~for details about~~ these ~~tools and their application in~~ the data ~~deposit and appraisal workflows~~.		There are a range of mitigation actions that archivists can recommend to depositors as detailed in the section covering Deposit and Appraisal [22]. The ADA will typically make these changes to the data on behalf of the depositor.

	~~The~~ ADA ~~encourages depositors to consult external guidelines~~ [28] ~~for managing disclosure risk. These resources are intended to provide context to the risk mitigation strategies recommended by the ADA archivist,~~ and ~~as a reference~~ for ~~prospective depositors to assist them in making decisions~~ about ~~deidentifying~~ their ~~data prior to submission or~~ in ~~consultation with~~ the ~~ADA~~.		Risk assessment tools are currently in use and in development at the ADA. See sections Quality Assurance [33] and Workflows [34] for details about these tools and their application in the data deposit and appraisal workflows.

	~~==Ethical standards ==~~		The ADA encourages depositors to consult external guidelines [28] for managing disclosure risk. These resources are intended to provide context to the risk mitigation strategies recommended by the ADA archivist, and as a reference for prospective depositors to assist them in making decisions about deidentifying their data prior to submission or in consultation with the ADA.

	The depositor is responsible for ensuring that data provided to the ADA has been collected from research participants subject to approved research ethics requirements. The ADA does not explicitly request or require evidence of ethical approval or review prior to deposit and the depositor must determine if their ethical obligations permit sharing of data.

	Australian researchers working with human participants and based at organisations that receive National Health and Medical Research Council (NHRMC) public research funding are subject to NHMRC National Statement on the Ethical Conduct of Research [64], and the Australian Code for Responsible Conduct of Research (ACRCR) [65].		== ETHICAL STANDARDS ==

	The ADA ~~does occasionally accept deposits~~ from ~~organisations that are not governed by the NHMRC guidelines~~. ~~In these instances, the~~ ADA ~~will work with~~ the depositor ~~to understand their consent process and~~ determine ~~appropriate access conditions~~ if ~~the data is deemed suitable for publication. The ADA License Agreement and Terms~~ of ~~Use specify appropriate uses of the~~ data ~~that comply with the original ethics approval. See section R02 [26]~~.		The depositor is responsible for ensuring that data provided to the ADA has been collected from research participants subject to approved research ethics requirements. The ADA does not explicitly request or require evidence of ethical approval or review prior to deposit and the depositor must determine if their ethical obligations permit sharing of data.

	The ADA also complies with ethical norms for data sharing as described in the Five Safes Framework. As described above, procedures for identifying and mitigating disclosure risk are in place to ensure data is sufficiently safe for secondary use. The ADA also evaluates requests for data access against the four remaining risk aspects of the framework to ensure that the people making the request, their projects, settings, and outputs are also sufficiently safe.		ADA’s ethical governance aligns with the FAIR and CARE Principles, ensuring that data sharing supports both openness and Indigenous rights in accordance with Australia’s national ethics codes.

			Australian researchers working with human participants and based at organisations that receive National Health and Medical Research Council (NHRMC) public research funding are subject to NHMRC National Statement on the Ethical Conduct of Research [64], and the Australian Code for Responsible Conduct of Research (ACRCR) [65]. For research with Aboriginal and Torres Strait Islander People and Communities, researchers must consult and apply NHMRC’s Ethical Conduct in Research with Aboriginal and Torres Strait Islander Peoples and Communities: Guidelines for Researchers and Stakeholders (2018) and Keeping Research on Track II (2018), and the AIATSIS Code of Ethics for Aboriginal and Torres Strait Islander Research (2020) and A Guide to Applying The AIATSIS Code of Ethics for Aboriginal and Torres Strait Islander Research (2020), produced by the Australian Institute of Aboriginal and Torres Strait Islander Studies (AIATSIS) [75]. ADA acknowledges and supports the CARE Principles outlined in these guidelines [46].


			ADA has been contributing to various projects working towards Indigenous Data Sovereignty [80], Indigenous Metadata development [79], and an ongoing project managed by Harvard Dataverse Project to integrate Local Contexts [78] tools to support Indigenous Cultural and Intellectual Property and Indigenous Data Sovereignty. See ADA Projects & Collaborations [81].


			The ADA does occasionally accept deposits from organisations that are not governed by the NHMRC guidelines. In these instances, the ADA will work with the depositor to understand their consent process and determine appropriate access conditions if the data is deemed suitable for publication. The ADA License Agreement and Terms of Use specify appropriate uses of the data that comply with the original ethics approval. See section on Rights Management [26].

			The ADA also complies with ethical norms for data sharing as described in the Five Safes Framework [96]. As described above, procedures for identifying and mitigating disclosure risk are in place to ensure data is sufficiently safe for secondary use. The ADA also evaluates requests for data access against the four remaining risk aspects of the framework to ensure that the people making the request, their projects, settings, and outputs are also sufficiently safe.

	==References==		==References==
Line 40:		Line 48:

	[65] Australian Code for Responsible Conduct of Research – (https://www.nhmrc.gov.au/about-us/publications/australian-code-responsible-conduct-research-2018)		[65] Australian Code for Responsible Conduct of Research – (https://www.nhmrc.gov.au/about-us/publications/australian-code-responsible-conduct-research-2018)

			[22] Deposit Appraisal & Collection Policy - (https://docs.ada.edu.au/index.php/Deposit_Appraisal_%26_Collection_Policy)

			[75] AIATSIS Code of Ethics for Aboriginal and Torres Strait Islander Research - (https://aiatsis.gov.au/research/ethical-research/code-ethics)

			[46] CARE Principles for Indigenous Data Governance - (https://ardc.edu.au/resource/the-care-principles/)

			[80] Social Indicators and Data Governance to Support Local Decision Making in the Groote Archipelago - (https://anindilyakwa.com.au/wp-content/uploads/2023/03/Social-Indicators-and-Data-Governance-to-Support-Local-Decision-Making-in-the-Groote-Archipelago.pdf)

			[79] Indigenous Metadata Bundle Communique - (https://doi.org/10.6084/m9.figshare.24353743.v1)

			[78] Local Contexts - (https://localcontexts.org/)

			[81] ADA Projects & Collaborations - (https://docs.ada.edu.au/index.php/ADA_Projects#ADA_Projects_and_Project_Collaborations)

			[96] 5 Safes - (https://fivesafes.org/)

RPerry: /* Legal & Ethical */

2024-09-10T04:42:03Z

Legal & Ethical

← Older revision		Revision as of 04:42, 10 September 2024
Line 5:		Line 5:
	The relevant legal standard in Australia for the creation, curation, preservation, and access of data is The Privacy Act 1988 [63], the principle Australian Government legislation protecting the handling and disclose of individuals’ personal information.		The relevant legal standard in Australia for the creation, curation, preservation, and access of data is The Privacy Act 1988 [63], the principle Australian Government legislation protecting the handling and disclose of individuals’ personal information.

	==~~Ethical standards~~ ==		==Management of Disclosure Risk ==

			All data are evaluated by an ADA archivist to determine disclosure risks and appropriate actions that should be taken to mitigate that risk. To comply with the Privacy Act, archivists first ensure that no directly identifying information (such as participant names and contact details) are included in the data and will remove any such information from all copies of the data files held and disseminated by the ADA. The archivists will also examine the data for indirect identifying information and evaluate risks of disclosure that might arise from combining that information and/or linking that data with other sensitive information in data or other sources.

			There are a range of mitigation actions that archivists can recommend to depositors as detailed in section R08. The ADA will typically make these changes to the data on behalf of the depositor.

	~~The depositor is responsible for ensuring that data provided to~~ the ADA ~~has been collected from research participants subject to approved research ethics requirements~~. ~~The ADA does not explicitly request or require evidence of ethical approval or review prior to deposit~~ and the ~~depositor must determine if their ethical obligations permit sharing of~~ data.		Risk assessment tools are currently in use and in development at the ADA. See sections R10 [33] and R11 [34] for details about these tools and their application in the data deposit and appraisal workflows.

	~~...Link~~ to ~~research ethics~~ guidelines...		The ADA encourages depositors to consult external guidelines [28] for managing disclosure risk. These resources are intended to provide context to the risk mitigation strategies recommended by the ADA archivist, and as a reference for prospective depositors to assist them in making decisions about deidentifying their data prior to submission or in consultation with the ADA.

	Australian researchers working with human participants and based at organisations that receive National Health and Medical Research Council (NHRMC) public research funding are subject to NHMRC National Statement on the Ethical ~~Conduct of Research, and the Australian Code for Responsible Conduct of Research (ACRCR).~~		==Ethical standards ==

	~~NHMRC National Statement on~~ the ~~Ethical Conduct of Research: https://www.nhmrc.gov.au/~~research~~-policy/~~ethics~~/national-statement-~~ethical~~-conduct-human-research (accessed 2024-06-18)~~		The depositor is responsible for ensuring that data provided to the ADA has been collected from research participants subject to approved research ethics requirements. The ADA does not explicitly request or require evidence of ethical approval or review prior to deposit and the depositor must determine if their ethical obligations permit sharing of data.

	Australian Code for ~~the~~ Responsible Conduct of Research~~: https://www.nhmrc.gov.au/about-us/publications/australian-code-responsible-conduct-research-2018~~ (~~accessed 2024-06-18~~)		Australian researchers working with human participants and based at organisations that receive National Health and Medical Research Council (NHRMC) public research funding are subject to NHMRC National Statement on the Ethical Conduct of Research [64], and the Australian Code for Responsible Conduct of Research (ACRCR) [65].

	NHMRC ~~National list~~ of ethics ~~committees: https://www~~.~~nhmrc.gov.au/sites/default/files/documents/attachments/Committee/HREC-Human-Research-Ethics-Committees-registered-with-NHMRC-LIST~~.~~pdf~~		The ADA does occasionally accept deposits from organisations that are not governed by the NHMRC guidelines. In these instances, the ADA will work with the depositor to understand their consent process and determine appropriate access conditions if the data is deemed suitable for publication. The ADA License Agreement and Terms of Use specify appropriate uses of the data that comply with the original ethics approval. See section R02 [26].

	The ADA ~~does occasionally accept deposits from organisations that~~ are ~~not governed by the NHMRC guidelines~~. ~~In these instances~~ the ~~ADA will work with~~ the ~~depositor~~ to ~~understand~~ their ~~consent process~~ and ~~determine appropriate access conditions if the data is deemed suitable for publication~~.		The ADA also complies with ethical norms for data sharing as described in the Five Safes Framework. As described above, procedures for identifying and mitigating disclosure risk are in place to ensure data is sufficiently safe for secondary use. The ADA also evaluates requests for data access against the four remaining risk aspects of the framework to ensure that the people making the request, their projects, settings, and outputs are also sufficiently safe.

	The ADA License Agreement and Terms of Use specify appropriate uses of the data that comply with the original ethics approval. The standard license agreement states that, ‘The material is not to be used for any non-statistical purposes, or for commercial or financial gain without the express written permission of the Australian Data Archive National Manager’.		==References==

	~~===The Five Safes Framework===~~		[33] Quality Assurance – (https://docs.ada.edu.au/index.php/Quality_Assurance)
	~~The ADA also complies with ethical norms for data sharing as described in the Five Safes Framework~~. ~~As described above, procedures for identifying and mitigating disclosure risk are in place to ensure data is sufficiently safe for secondary use~~. The ADA also evaluates requests for data access against the four remaining risk aspects of the framework to ensure that the people making the request, their projects, settings, and outputs are also sufficiently safe.

	~~==Management of disclosure risk ==~~		[34] Workflows – (https://docs.ada.edu.au/index.php/Workflows)

	~~All data are evaluated by an ADA archivist to determine disclosure risks and appropriate actions that should be taken to mitigate that risk~~. To comply with the Privacy Act, archivists first ensure that no directly identifying information (such as participant names and contact details) are included in the data and will remove any such information from all copies of the data files held and disseminated by the ADA. ~~The archivists will also examine the data for indirect indentifying information and evaluate risks of disclosure that might arise from combining that information and~~/~~or linking that data with other sensitive information in data or other sources~~.		[26] Rights Management – (https://docs.ada.edu.au/index.php/Rights_Management)

	~~===Mitigation strategies===~~		[63] The Privacy Act, 1988 – (https://www.oaic.gov.au/privacy/privacy-legislation/the-privacy-act)
	~~There are a range of mitigation actions that archivists can recommend to depositors incuding~~...

	~~The ADA will typically make these changes to the data on behalf of the depositor~~.		[28] Legal & Ethical – (https://docs.ada.edu.au/index.php/Legal_%26_Ethical)

	~~====External guidelines====~~		[64] NHMRC National Statement on the Ethical Conduct of Research – (https://www.nhmrc.gov.au/research-policy/ethics/national-statement-ethical-conduct-human-research)
	* ABS: Data confidentiality guide
	~~https://www.abs.gov.au/about/data-services/data-confidentiality-guide~~
	* OAIC: Deidentification and the ~~Privacy Act~~
	https://www.~~oaic~~.gov.au/~~privacy/privacy-guidance-for-organisations-and-government~~-~~agencies~~/~~handling-personal-information~~/~~de-identification-and-the~~-~~privacy~~-~~act~~
	* UniSQ: Ethics, consent and data sharing [pdf]
	~~https://www.unisq.edu.au/~~-~~/media/usq/research/research~~-~~support/~~human~~-ethics/specific~~-research~~/ands-ethics-consent-and-data-sharing-guide.ashx?rev=911d3afab0c845c2a27d066a38921902&hash=C948891CF15DE7342092A9511A21B9E9~~

	~~====Risk assessment tools at ADA====~~		[65] Australian Code for Responsible Conduct of Research – (https://www.nhmrc.gov.au/about-us/publications/australian-code-responsible-conduct-research-2018)
	* [~~see sections 10 & 11~~]

RPerry: /* Legal standards */

2024-09-10T04:40:07Z

Legal standards

@@ Line 3: / Line 3: @@
 ==Legal standards ==
-The relevant legal standard in Australia for the creation, curation, preservation, and access of data is The Privacy Act 1988, the principle Australian Government legislation protecting the handling and disclose of individuals’ personal information.
+The relevant legal standard in Australia for the creation, curation, preservation, and access of data is The Privacy Act 1988 [63], the principle Australian Government legislation protecting the handling and disclose of individuals’ personal information.
 ==Ethical standards ==

RPerry: /* Other ethical frameworks */

2024-07-08T03:03:54Z

Other ethical frameworks

← Older revision		Revision as of 03:03, 8 July 2024
Line 61:		Line 61:
	====Risk assessment tools at ADA====		====Risk assessment tools at ADA====
	* [see sections 10 & 11]		* [see sections 10 & 11]

	~~==Other ethical frameworks==~~

	~~5-safes~~

	~~FAIR~~

RPerry: /* Ethical standards */

2024-07-08T03:03:46Z

Ethical standards

← Older revision		Revision as of 03:03, 8 July 2024
Line 37:		Line 37:
	The ADA does occasionally accept deposits from organisations that are not governed by the NHMRC guidelines. In these instances the ADA will work with the depositor to understand their consent process and determine appropriate access conditions if the data is deemed suitable for publication.		The ADA does occasionally accept deposits from organisations that are not governed by the NHMRC guidelines. In these instances the ADA will work with the depositor to understand their consent process and determine appropriate access conditions if the data is deemed suitable for publication.

	The ADA License Agreement and Terms of Use specify appropriate uses of the data that comply with the original ethics approval. The standard license agreement states that, ‘The material is not to be used for any non-statistical purposes, or for commercial or financial gain without the express written permission of the Australian Data Archive National Manager’.		The ADA License Agreement and Terms of Use specify appropriate uses of the data that comply with the original ethics approval. The standard license agreement states that, ‘The material is not to be used for any non-statistical purposes, or for commercial or financial gain without the express written permission of the Australian Data Archive National Manager’.

			===The Five Safes Framework===
			The ADA also complies with ethical norms for data sharing as described in the Five Safes Framework. As described above, procedures for identifying and mitigating disclosure risk are in place to ensure data is sufficiently safe for secondary use. The ADA also evaluates requests for data access against the four remaining risk aspects of the framework to ensure that the people making the request, their projects, settings, and outputs are also sufficiently safe.

	==Management of disclosure risk ==		==Management of disclosure risk ==

RPerry: /* Risk assessment tools at ADA */

2024-07-01T02:36:15Z

Risk assessment tools at ADA

← Older revision		Revision as of 02:36, 1 July 2024
Line 57:		Line 57:

	====Risk assessment tools at ADA====		====Risk assessment tools at ADA====
	* ~~one~~		* [see sections 10 & 11]
	* two
	* three

	==Other ethical frameworks==		==Other ethical frameworks==

RPerry at 00:00, 1 July 2024

2024-07-01T00:00:52Z

← Older revision		Revision as of 00:00, 1 July 2024
Line 53:		Line 53:
	* OAIC: Deidentification and the Privacy Act		* OAIC: Deidentification and the Privacy Act
	https://www.oaic.gov.au/privacy/privacy-guidance-for-organisations-and-government-agencies/handling-personal-information/de-identification-and-the-privacy-act		https://www.oaic.gov.au/privacy/privacy-guidance-for-organisations-and-government-agencies/handling-personal-information/de-identification-and-the-privacy-act
			* UniSQ: Ethics, consent and data sharing [pdf]
			https://www.unisq.edu.au/-/media/usq/research/research-support/human-ethics/specific-research/ands-ethics-consent-and-data-sharing-guide.ashx?rev=911d3afab0c845c2a27d066a38921902&hash=C948891CF15DE7342092A9511A21B9E9

	====Risk assessment tools at ADA====		====Risk assessment tools at ADA====

RPerry: /* External guidelines */

2024-06-30T23:38:06Z

External guidelines

← Older revision		Revision as of 23:38, 30 June 2024
Line 49:		Line 49:

	====External guidelines====		====External guidelines====
	* ~~one~~		* ABS: Data confidentiality guide
	* ~~two~~		https://www.abs.gov.au/about/data-services/data-confidentiality-guide
	* three		* OAIC: Deidentification and the Privacy Act
			https://www.oaic.gov.au/privacy/privacy-guidance-for-organisations-and-government-agencies/handling-personal-information/de-identification-and-the-privacy-act

	====Risk assessment tools at ADA====		====Risk assessment tools at ADA====

RPerry: Created page with "=Legal & Ethical= ==Legal standards == The relevant legal standard in Australia for the creation, curation, preservation, and access of data is The Privacy Act 1988, the principle Australian Government legislation protecting the handling and disclose of individuals’ personal information. Privacy Act: https://www.oaic.gov.au/privacy/privacy-legislation/the-privacy-act ===how ADA complies with Privacy Act=== overview of risk assessement and deidentification ===O..."

2024-06-29T06:03:54Z

Created page with "=Legal & Ethical= ==Legal standards == The relevant legal standard in Australia for the creation, curation, preservation, and access of data is The Privacy Act 1988, the principle Australian Government legislation protecting the handling and disclose of individuals’ personal information. Privacy Act: https://www.oaic.gov.au/privacy/privacy-legislation/the-privacy-act ===how ADA complies with Privacy Act=== overview of risk assessement and deidentification ===O..."

New page

=Legal & Ethical=

==Legal standards ==

The relevant legal standard in Australia for the creation, curation, preservation, and access of data is The Privacy Act 1988, the principle Australian Government legislation protecting the handling and disclose of individuals’ personal information.

Privacy Act: https://www.oaic.gov.au/privacy/privacy-legislation/the-privacy-act

===how ADA complies with Privacy Act===

overview of risk assessement and deidentification

===Other procedures that comply with privacy act ===

* Transparent privacy policy

* Secure storage

* Updates, corrections, retractions

* Overseas disclosure

==Ethical standards ==

The depositor is responsible for ensuring that data provided to the ADA has been collected from research participants subject to approved research ethics requirements. The ADA does not explicitly request or require evidence of ethical approval or review prior to deposit and the depositor must determine if their ethical obligations permit sharing of data.

...Link to research ethics guidelines...

Australian researchers working with human participants and based at organisations that receive National Health and Medical Research Council (NHRMC) public research funding are subject to NHMRC National Statement on the Ethical Conduct of Research, and the Australian Code for Responsible Conduct of Research (ACRCR).

NHMRC National Statement on the Ethical Conduct of Research: https://www.nhmrc.gov.au/research-policy/ethics/national-statement-ethical-conduct-human-research (accessed 2024-06-18)

Australian Code for the Responsible Conduct of Research: https://www.nhmrc.gov.au/about-us/publications/australian-code-responsible-conduct-research-2018 (accessed 2024-06-18)

NHMRC National list of ethics committees: https://www.nhmrc.gov.au/sites/default/files/documents/attachments/Committee/HREC-Human-Research-Ethics-Committees-registered-with-NHMRC-LIST.pdf

The ADA does occasionally accept deposits from organisations that are not governed by the NHMRC guidelines. In these instances the ADA will work with the depositor to understand their consent process and determine appropriate access conditions if the data is deemed suitable for publication.

The ADA License Agreement and Terms of Use specify appropriate uses of the data that comply with the original ethics approval. The standard license agreement states that, ‘The material is not to be used for any non-statistical purposes, or for commercial or financial gain without the express written permission of the Australian Data Archive National Manager’.

==Management of disclosure risk ==

All data are evaluated by an ADA archivist to determine disclosure risks and appropriate actions that should be taken to mitigate that risk. To comply with the Privacy Act, archivists first ensure that no directly identifying information (such as participant names and contact details) are included in the data and will remove any such information from all copies of the data files held and disseminated by the ADA. The archivists will also examine the data for indirect indentifying information and evaluate risks of disclosure that might arise from combining that information and/or linking that data with other sensitive information in data or other sources.

===Mitigation strategies===
There are a range of mitigation actions that archivists can recommend to depositors incuding...

The ADA will typically make these changes to the data on behalf of the depositor.

====External guidelines====
* one
* two
* three

====Risk assessment tools at ADA====
* one
* two
* three

==Other ethical frameworks==

5-safes

FAIR